It's A Nightmare, My forehead comes out instead of up Options

[Lonelydude]

I'm a 28 year old man who now finally realizes what I have, Craniosynostosis! Growing up with a forehead that comes out instead of sloping up was very hard ,but I excelled in sports. Up untill the 9th grade people used to whisper and say things like big head and all sorts of nonsense but again, I played sports , so it would stop. Then at the tender age of 17 I started to lose my hair and that was it. That was the worst thing that could happen to be with a forehead like this because now without hair , i'd look like more of a freak than I already was . I stopped playing sports because I didnt want to go thru the teasing. I pretty much stopped my life and started wearing a hat to cover up the hair loss . I didnt realize it was not so much of the hiding of the hair loss but everything to do with this big bump of a forehead I have. Nobody in my familiy said anything to me about this problem but all my life I thought I was the only 1 on earth who had a forehead like this. I thought i was an alien or some sort of mutant freak. I have no relationship with females to speak of because how could a girl with a normal forehead fall in love with a balding big forehead coming out freak like me , and my life has been a living hell for the past 10 years. Wearing that hat to cover up my baldness was the worst thing I could have done because I havent left the house without it since 95. It's not so much the baldness because everyone goes bald but this forehead of mine comes out. I'm in so much pain everyday . I can't find regular work because I need a job that u can wear a hat on the job , otherwise , I'd fall apart. I wish my mother or my familiy recognize my big coming out forehead when I was a child but they let me grow up like this thinking nothing was wrong. God, even a scar across my head would be better than this forehead . I'm almost at rock bottom because I want love in my life but I know that will never happen. I want steady work in my life but Im more concerned with this forehead to concentrate on anything else.

Funny , all this time I thought I was the only 1 since my 'nurse' mother never said anything to me but growing up has been anything but easy. All I do now is stay at home with no desire to go out. I was really good in sports and had a future ,, then I lost my hair and couldnt live with the fact this forehead of mine would be more out there than it ever was.

If you have a child with a forehead that comes out instead of up , get help fast . This life isnt easy and most people would have ended their lives years ago. I remember back in 1996, I was working with some girls for a couple of day while I was wearing my hat. We got along so good and everything was ok. 1 day I was forced to take off my hat and the girls were like , u look different. Needless to say those girls stopped talking to me and thus the story of my life. I learned that this forehead wont be accepted anywhere and the nightmare of my life continues .

I can't believe it took me all this time to realize that I wasnt the only 1 in the world like this but I dont take comfort in the fact that there are more people like me and maybe worse than me . All I wanted was a normal life and thats something I fear i'll never have. Im 28 and it's still hard for me . DO WHATEVER IT TAKES IF U THINK UR CHILD HAS THIS PROBLEM BECAUSE GROWING UP WITH A FOREHEAD THAT COMES OUT HAS MADE ME 1 LONELY DUDE WITH NO WHERE TO TURN TOO.

[jennasmom]

I just wanted to say sorry for everything you have been through. Sharing your story will help many people.

[Three_of_a_Kind]

Lonelydude,

Trust me if anyone knows more of what you are talking about that would be me! I am 36 years old and had surgery when I was younger but still the constant teasing was horrible! It has made me a rather shy person!

I would not think it is too late to get your skull checked out! My daughter who is 13 had surgery just this year, Yeah I know you are 15 years older but she is still consider an adult just as you are! It is something to think about!

You ever wanna talk PM me!

[Francescasmom]

Hi Lonely Dude,

Thank you for having the courage to share your story--hopefully you will help others who are having similar experiences. I wanted to tell you that our daughter's neurosurgeon told us he had performed a cranial reconstruction on a 30+ year old man and the results were very good. He was starting to lose his hair and became more self-conscious about it and decided to do something about it. Is this an option for you?

[mommyjamieof2]

Hi I am a mother of a 7 year old with metopic craniosynostosis and I am trying to decide if we are going to do surgery. Would you please contact me at mommy2gageandbri@yahoo.com thanks